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Ann Harding
Ann Harding became Chair of HAE UK in August 2021. Ann is a Director in the construction industry.
Her daughter Sian is a HAE patient. Ann has been a member of HAE UK, and before that the PIA, for many years, and has great experience in getting treatment for her daughter and family members. Ann was happy to agree to join HAE UK as a Trustee to bring any skills she may have to assist the organisation.
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Barrie Hurley
Barrie Hurley is a retired company director and was involved in the setting up of HAE UK as a registered charity.Barrie has a niece who has HAE and he is keen to continue helping HAE UK going forward.
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Dana Shapiro
Dana is a candidate for a Masters in Innovation, Creativity and Leadership at Cass Business School at City, University of London. Prior to returning to education, Dana worked in finance, auditing and bank regulatory reporting for almost a decade.She was diagnosed with HAE in 2003 in the United States and moved to the UK in 2012. She became involved with HAE UK in 2014 when she fundraised in preparation to climb Mount Kilimanjaro.Dana joined the HAE UK Board of Trustees in 2017 to help people with HAE take control of their lives, improve their well-being and reach a higher quality of life. She looks forward to creating a stronger association with the medical and research communities to improve both knowledge and treatment of HAE patients with the long-term goal of finding a cure for HAE.
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June Cole
June is an HAE patient and is passionate about educating and raising awareness of HAE from a patient’s perspective amongst A&E staff and GP Practices, and to advocate for HAE patients. June is retired, having worked for a number of years for a pharmaceutical company in research. In her spare time June enjoys singing.
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Rose Joseph
Rose is a Sales Administrator for a BMW dealer and has worked in the Motor trade for over 30 years. Rose has HAE type 1 and was diagnosed at 18 after suffering symptoms from the age of 5. Her only other known relative with HAE was her late mother. Rose likes to live life to the full and enjoys many sporting activities including cycling and running; she doesn’t let her HAE hold her back. Rose enjoys working with the board of HAE UK to raise awareness and develop services for the betterment of all HAE patients.
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Simon Mumford
Simon Mumford was Partner at the law firm Pinsent Masons LLP for 20 years and is now a Consultant to the firm. He has over 30 years of experience as a solicitor. He is also a Governor at a University and has strong experience in this role of governance issues for charitable organisations.
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Tim Crouch
Tim Crouch is a retired GP who lives in Stroud. Tim qualified as a doctor in 1974 from Queen’s University in Belfast. He worked for 33 years as a GP at Frithwood Surgery in Bussage, Gloucestershire. Tim’s special interests were ENT and Minor Injuries.Tim retired from general practice in May 2014. His other interests include cycling, skiing and windsurfing.