Living with HAE and how you manage the symptoms varies from patient to patient. Whilst some people rarely suffer attacks, others suffer more than one attack per week, which can make daily living quite challenging.

If you are having difficulties managing your attacks, it is important to discuss this with your consultant or specialist nurse as soon as possible. Keep a diary of your symptoms, include dates and times and how the attack impacted on your day-to-day living.

HAE UK is able to offer one-to-one support, can advise on your nearest HAE consultant and offer advice about medications and managing attacks.