In May 2016 Alex Graham joined HAE UK as our Youth Ambassador. Alex joined some of us at the HAEi Global Conference in Madrid and met lots of HAE youngsters from around the world. She also makes contact with and keeps in touch with the HAE UK youngsters and organised a youngsters breakout session at our annual patient day in Bristol.

We have set up a ‘Young HAE UK’ Facebook group and would welcome any youngster with HAE to get in touch with us and join this group for friendship and support.

There will also be a youngsters HAE Summer Camp in August, organised by HAE International. It will be a fantastic weekend, more details will be available soon.