We will keep in touch with our members on a regular basis, sending newsletters and e-mails about important HAE information, new drugs and trials.
As a member you will also have access to the confidential forums, where you can ask questions and chat with other members in a safe and secure environment. You will also have the chance to ask a question to be answered by one of our medical advisory panel (MAP).
If you include your full address when you register, we will also send you a welcome pack, filled with lots of useful information and advice which you can use to share information with your employers, local hospital and GP surgery.
Please encourage all of your family members with HAE to also register, including any children you have. In doing this we can gain a clearer idea of how many HAE patients there are in the UK and where you are located, so we can better support you all.
We will never pass your information to third parties without your consent and will not fill your inbox with junk mail! If at any time you wish to cancel your membership, you can do this with a simple e-mail to firstname.lastname@example.org