HAE Patient booklet

You can download a copy of the patient information booklet here.

If you would like a printed copy please e-mail: [email protected] and we will be happy to send one to you.

Recording your HAE attacks – HAEi TrackR

 It is important to keep track of your HAE attacks and treatments. The HAEi TrackR app is made by patients for patients and can be downloaded to your smartphone. Find out more about TrackR

Emergency cards

An emergency card can be a quick and effective way to let healthcare professionals know that you have a diagnosis of HAE when you arrive at a hospital or care center, and the treatment that should be considered. HAEi have developed an emergency card template which you can download and complete. These can also be translated into many different languages, which is useful for taking on holiday, just in case. You can access the card by following this link.


It is important for HAE patients to always carry a doctor’s letter or a medic alert or similar pendant.