Resources
HAE Patient booklet
You can download a copy of the patient information booklet here.
If you would like a printed copy please e-mail: [email protected] and we will be happy to send one to you.
Recording your HAE attacks – HAEi TrackR
It is important to keep track of your HAE attacks and treatments. The HAEi TrackR app is made by patients for patients and can be downloaded to your smartphone. Find out more about TrackR
You can also track your attacks using these resources from the Power of Patnership: Shared Decision Making programme. These are post attack questionnaires and an attack diary that you can either complete online and email to your care team, or you can print them out, complete and take with you to your next clinic consultation.
Emergency cards
An emergency card can be a quick and effective way to let healthcare professionals know that you have a diagnosis of HAE when you arrive at a hospital or care center, and the treatment that should be considered. HAEi have developed an emergency card template which you can download and complete. These can also be translated into many different languages, which is useful for taking on holiday, just in case. You can access the card by following this link.
MedicAlert
It is important for HAE patients to always carry a doctor’s letter or a medic alert or similar pendant.
Join us on social media
Facebook closed group: https://www.facebook.com/groups/144736285644751
Facebook open page: https://www.facebook.com/haeuk
Instagram: https://www.instagram.com/uk_hae/?hl=en-gb
X (Twitter): https://www.twitter.com/hae_uk
HAE UK works closely with the following organisations:
