With your support HAE UK aims to raise awareness of this very rare condition and to work together to ensure better treatment and support for HAE patients and their families.

  • We campaign for better diagnosis and treatment
  • We hold patient days where you can hear presentations from HAE Specialists and meet other HAE patientsWe maintain a website to offer practical information and advice about living with HAE
  • We have a closed Facebook group where we can support each other
  • We provide confidential one-to-one support to individuals with HAE

You can support HAE UK by providing a one off or regular donation, organising a fundraising activity, shopping online or leaving a legacy gift.

Just Giving

You can make a simple one-off donation or a regular monthly donation to HAE UK via JustGiving.
If you want to organise a sponsored event to raise money for HAE UK, you can also set up your own JustGiving fundraising page so your sponsors can donate online.

To find out more visit the Justgiving website

Payroll Giving

Payroll Giving is a flexible scheme which allows anyone who pays UK income tax to give regularly and on a tax free basis, straight from your wages or pension. This happens before tax is deducted from your income.

To set up a regular donation to HAE UK please download and complete the Payroll Giving form (link)


Do you shop online? easyfundraising is a way to raise money for HAE UK simply by shopping online in your normal way. easyfundraising partners with over 7,000 brands who will donate part of what you spend to a cause of your choice. It won’t cost you any extra. The cost is covered by the brand.

Please see the easyfundraising website to sign up.

Leave a gift in your will

Leaving a legacy gift is not complicated. All you need to do is state in your will that you would like to leave a gift to HAE UK. We would recommend using a solicitor to make sure your will is legal and valid.
To leave a gift to HAE UK you will need to include our charity name: HAE UK, and registered charity number: 1152591. Any size gift that you are able to leave HAE UK will be used to help support the lives of all HAE patients in the UK.

Thank you so much for your support for HAE UK