My HAE – Luke’s story

My name is Luke. My sister and mum has HAE so do I.

I am eight years old. I have never had symptoms of it though Flo and my mum often get attacks. I think that when I am older I might get attacks. If I do my doctor will give me the right treatment.

My family were the first family in the country to get treatment for attacks in 1983. But I don’t think that HAE will stop me enjoying the rest of my life.