Fundraising for HAE UK

With your support HAE UK aims to raise awareness of this very rare condition and to work together to ensure better treatment and support for HAE patients and their families.

  • Campaigning for better diagnosis and treatment
  • Holding patient days where we can hear presentations from HAE Specialists and we can meet other HAE patients
  • Maintaining a website to offer practical information and advice
  • Providing a closed Facebook group where we can support each other
  • Providing confidential one to one support

You can support HAE UK by providing a one off or regular donation, organising a fundraising activity, shopping online or leaving a legacy gift.



You can make a simple one off donation or a regular monthly donation to HAE UK via JustGiving.

If you want to organise a sponsored event to raise money for HAE UK, you can also set up your own JustGiving fundraising page so your sponsors can donate online.

To find out more visit the Justgiving website


Payroll Giving

Payroll Giving is a flexible scheme which allows anyone who pays UK income tax to give regularly and on a tax free basis straight from your wages or pension. This happens before tax is deducted from your income.

To set up a regular donation to HAE UK please download and complete the Payroll Giving form



Do you shop online? easyfundraising is a way to raise money for HAE UK simply by shopping online in your normal way. Every time you make a purchase online with one of the 2,700+ participating retailers, the retailer will make a donation via easyfundraising. Retailers include Amazon, John Lewis, eBay and many more.

To start raising money by online shopping, with no additional cost to yourself, please see the easyfundraising website.


Leave a gift in your will

Leaving a legacy gift is not complicated. All you need to do is state in your will that you would like to leave a gift to HAE UK. We would recommend using a solicitor to make sure your will is legal and valid.

To leave a gift to HAE UK you will need to include our charity name: HAE UK, and registered charity number: 1152591. Any size gift that you are able to leave HAE UK will be used to help support the lives of all HAE patients in the UK.


Thank you so much for your support for HAE UK.