Contact us

Unfortunately we are unable to give you emergency medical advice. You should seek help from A&E if you are experiencing severe symptoms or a medical emergency.

If you are having ongoing medical care issues, or if you need advice, support or help with anything else related to HAE, then please do contact us in confidence:

E-mail: support@haeuk.org

Telephone Angela Metcalfe: 07975 611787

Write to us: HAE UK, PO Box 448, Bridgwater TA6 9GB

Patients with HAE are being enrolled in a clinical research study called the Oasis-HAE Study. The study drug is called donidalorsen, an investigational antisense therapy being studied for the treatment of HAE. More info can be found here: [https://t.co/8PtRfVqnpq] #patientsupport https://t.co/NndKsOH3Vg

h J R

@HAE_UK

- 13 days ago

@HAEDAY: Are you an HAE patient, caregiver, or youngster living in Europe, the Middle East, or Africa? Do you want to participate in the 2023 HAEi Regional Conference EMEA, 1-3 Sept? Apply for a travel grant here: https://t.co/urE8sSkBfI Don't delay - applications close in 2 days! https://t.co/SYIMlGgbUY

h J R

@HAE_UK

- 13 days ago

The Rt Hon Sir Iain Duncan Smith MP and Angela Metcalfe CEO of HAE UK supporting Rare Disease Day 2023 #RareDiseaseDay2023 #SupportingPatients #HAEUK https://t.co/8HUTawWoVj

h J R

@HAE_UK

- 20 days ago