Advice & support

You are welcome to contact HAE UK Patient Support to discuss your HAE needs in confidence.

E-mail:  or Telephone: 07975 611787


Register with us

HAE patients benefit from information and support from our own patient association and we encourage everyone with a diagnosis of HAE to register with us so we can work together to ensure better treatment and support for all our patients and their families.

If you would like to register for free HAE UK membership and to receive newsletters please complete our confidential online registration form


Join us on Facebook

HAE UK has a private Facebook group that is open to all HAE UK members and the parents of children with HAE. We invite you to join our  group, HAE UK Association, where you can make contact with and gain support from other HAE patients in the UK.

Find out more here.


HAE UK on Twitter

HAE are on Twitter. Find out more here.