About HAE UK
Our Mission Statement
To support residents of the United Kingdom who have Hereditary Angioedema (HAE), and their families.
Our Aims
- To facilitate access to the best available treatment for each individual afflicted by HAE type 1, HAE type 2 or Acquired Angioedema
- To promote good practice in the diagnosis and treatment of HAE
- To promote research into new treatments and a cure
- To provide support to those affected by HAE and their families
- To seek to improve the quality of life of those affected by HAE
- To support the work of HAE International
Supplementary Aims
HAE UK will help support those who are going through the process of testing which may result in this diagnosis.
We welcome those with HAE type 3 for general support, but we are unable at present to offer guidance for this group who should seek advice directly from their specialist.
Our Values
HAE UK embraces the following values:
Advocacy
Actively representing all who have HAE to improve their quality of life by engaging our members and representing their needs.
Respect
Treating people with whom we interact with dignity, fairness and compassion.
Collaboration
Fostering strong and meaningful relationships with our stakeholders and partners, where collaboration, discussion and exchange of ideas is encouraged and supported by members, Trustees and staff.
Stewardship
HAE UK’s Trustees and members will act responsibly by effectively planning and managing all available resources.
Our Global Responsibility
HAE UK is an independent national patient association affiliated to HAE International. We work in co-operation with other national HAE patient associations to support the worldwide HAE family.
Our Privacy Policy
Your privacy and security are very important to us and we are fully committed to keeping your data safe. You can read our Privacy Policy by following this link.
