HAE UK holds an annual patient day in November each year. This is an opportunity to meet with other HAE patients and their family members and hear presentations from some of the top UK HAE clinicians. The location of the event changes each year to enable patients from all over the UK to be able to attend one without having to travel too far. We have visited London, Manchester, Cambridge, Birmingham, Bristol, Sheffield and Farnham to date.
In 2016 we held our first Scottish patient day, in Perth, which was a great success. This followed with patient days in Glasgow and Edinburgh and is something we hope to hold annually.
In late 2016 we launched our HAE UK huddles; smaller, less formal gatherings with people in your locality. Our first huddle was a great success and we hope to repeat these in warmer months.
To find out about all of our HAE events, see our Event calendar.