HAE UK is an Association of HAE Patients, working together to improve the situation for all HAE Patients in the UK
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Press Releases

19th February 2015

OPuS-2 Clinical trial research study
OPuS-2 Clinical trial research study additional centres
OPuS-2 Clinical trial research study additional centres July 2015 

27th May 2014

BioCryst Announces Positive Results From OPuS-1, a Phase 2 Trial of BCX4161 for the Prophylactic Treatment of Hereditary Angioedema

12th March 2012

Press Release about Firazyr


HAE UK newsletters

HAE UK Newsletter Issue 10

HAE UK Newsletter Issue 9

HAE UK Newsletter Issue 8

HAE UK Newsletter Issue 7

HAE UK Newsletter Issue 6

HAE UK Newsletter Issue 5

HAE UK Newsletter Issue 4

HAE UK Newsletter Issue 3

HAE UK Newsletter Issue 2


HAE in the news

Daily Mail online news article, May 2014 (Isabel Richards)

28th February was Rare Disease Day 2013. To see the Rare Disease Day supplement from the Independent newspaper, see here.

Tameside Reporter newspaper article, May 2013 (Jen Harrison)

Dublin People newspaper article, May 2013 (Bettina Carty)

Article from the Nursing Standard, May 2013

South Wales Argus website article, April 2013 (Andy Long)

BBC news website article, May 2012 (Rachel Annals)

Real People magazine article, July 2012 (Kathryn Lowe)


Declan McComb is raising money for HAE UK by taking part in a 55 mile sponsored cycle ride on 13th June. To support Declan and help him reach his target, please visit his JustGiving page

HAE UK Patient Day 2014

HAE UK Patient Conference, Manchester – 24th November 2012

HAE Global Patient Conference, Copenhagen, Denmark – 17th to 20th May 2012

HAE Day 2012 - 16th May 2012



Hereditary Angioedema
Patient Association:
Living for today,
planning for tomorrow.

Registered Charity
Number: 1152591