Your current HAE treatment questionnaire
We would really appreciate your help by taking part in our questionnaire. This will help us to gan a greater understanding of your current treatment and where there may be room for improvements. The questionnaire will take between 10-20 minutes for you to complete. You can participate by following this link.
We really appreciate your support, thank you.
One of our members, Philippa Adams, completed a University dissertation on HAE, titled ‘The Lived Experience of Women Who Have Hereditary Angioedema’
You can read her dissertation here.
HAE UK newsletters
HAE International newsletters
HAE in the media
29th February 2016 was Rare Disease Day. Click here to see the Rare Disease Day supplement from the Independent newspaper
News from the Pharmaceutical Companies
12th March 2012
Press Release about Firazyr
The next HAE UK Patient Day is to be held at the Mercure St Paul’s, Sheffield. More details about this popular event is available on the events page.
HAE Day is on 16th May each year. Visit the HAE Awareness Day website to find out more and to see how you can help spread awareness of HAE.
The HAE Global Conference is held every two years. The next conference is to be held in Vienna in May 2018. Find out more by visiting the HAEi website