Joint statement from HAE UK, UKPIN, HAE Clinical Network and the NHSE Immunology CRG Chair

24th March 2020

Some patients with HAE have received a communication from the NHS stating that they are at risk of severe illness if they catch COVID-19. This would not be related to their HAE itself but to any additional risk factors such as age, chronic heart disease, chronic lung disease, asthma etc. Patients with HAE are not thought to have any increased risk of harm from COVID-19 compared to the general population. HAE patients should take the same precautions as recommended by the government for the general public https://www.gov.uk/coronavirus

If you need further information, please contact: laura.szutowicz@haeuk.org


Be prepared

As HAE patients, we should be prepared, just in case. Ensure you have a good supply of all your regular medications, as well as copies of your HAE letters, your A&E card (if you have one) and the name and contact details of your HAE consultant and specialist nurse. If you do have to be admitted to hospital, it is important to take all of these with you so the team treating you have all your information easily to hand.

Remember we, HAE UK, are here to support you. You can e-mail us any time: support@haeuk.org or call us on: 07975 611787.


Information from the Government

Advice for everyone: https://www.nhs.uk/conditions/coronavirus-covid-19/
Read the latest information from the Government: https://www.gov.uk/coronavirus

If you need medical advice about your coronavirus symptoms
• England: https://111.nhs.uk/covid-19/
• Scotland: https://www.nhsinform.scot/illnesses-and-conditions/infections-and-poisoning/coronavirus-covid-19
• Wales: https://www.nhsdirect.wales.nhs.uk/SelfAssessments/symptomcheckers/COVID19.aspx
• Northern Ireland: https://www.publichealth.hscni.net/news/covid-19-coronavirus


COVID-19 and your emotional wellbeing

By PID UK – Supporting families affected by primary immunodeficiencies. Part of Genetic Disorders UK, and
HAE UK

PID UK and HAE UK Emotional Wellbeing and Covid-19

Version 1, dated 31stMarch 2020


Public Health England –  Guidance on protecting people most likely to get very poorly from coronavirus (shielding) 

Coronavirus (Covid-19)
Guidance on protecting people most likely to get very poorly from coronavirus


Anxiety UK – Coronanxiety support and resources

Anxiety UK have a dedicated page offering a range of information, resources and support for helping you understand how to deal with your anxiety during these difficult times while Coronavirus (COVID-19) is impacting on our lives.


With thanks to Dr Kate Edgar for sharing the following:


Guide to living with worry and anxiety amidst global uncertainty

Guide to living with worry and anxiety amidst global uncertainty


Face Covid – How to respond effectively to the Corona crisis.

By Dr Russ Harris, author of The Happiness Trap

Face Covid – How to respond effectively to the Corona crisis