Ann story

Living with HAE - Ann's story The story of hereditary angioedema (HAE) in our family is a very positive one. Although it started with much ignorance, fear, pain and mismanagement, we now understand the disorder and have confidence and enough control over the situation to live full and active lives. We hope that in the future, as new therapies come onto the market, the prospects will be still better. I have told our family story to encourage those who have had to struggle, and perhaps continue to struggle, with many years of misdiagnosis and inadequate treatment. Let me start by introducing our family as we are today. I am a 67-year retired nurse. My husband John, also 67, is a health and safety specialist. We have three grown up children: two sons and a daughter. My own symptoms first occurred when I started taking the contraceptive pill at the age of 23. I immediately experienced severe bouts of gross oedema about once a week, involving arms,...
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