HAEUK HAE UK is an Association of HAE Patients, working together to improve the situation for all HAE Patients in the UK
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Contact us

Advice & support

You are welcome to contact Ann Price (HAE UK Patient Support) to discuss your HAE needs in confidence.

E-mail: ann.price@haeuk.org  or Telephone: 01273 813659

Write to us: HAE UK, PO Box 448, Bridgwater, TA6 9GB

 

Register with us

HAE patients benefit from information and support from our own patient association and we encourage you to register with us so we can work together to ensure better treatment and support for all our patients and their families.

If you would like to register for free HAE UK membership and to receive newsletters please complete our confidential online registration form

 

Join us on Facebook

We invite you to join our private Facebook group, HAE UK Association, where you can make contact with and gain support from other HAE patients in the UK.

Find out more here.

 

Register for HAE UK Discussion Forum

This is a private Google discussion forum open to members of HAE UK by invitation only. To request to join please email: rachel.annals@haeuk.org

 

HAE UK on Twitter

HAE are now on Twitter. Find out more here.

 

HAE UK Mission

HAE UK is our new HAE Patient Association focusing solely on the needs of HAE patients and their families. HAE UK www.haeuk.org operates under the umbrella of the International HAE Patient Association www.HAEI.org

Our Mission Statement

To support residents of the United Kingdom who have hereditary angioedema (HAE), and their families.

Aims

  1. To facilitate access to the best available treatment for each individual afflicted by HAE.
  2. To promote good practice in the diagnosis and treatment of HAE.
  3. To promote research into new treatments and a cure.
  4. To provide support to those affected by HAE and their families.
  5. To seek to improve the quality of life of those affected by HAE.
  6. To support the work of HAE International.

Supplementary Aim:

Whilst recognizing that acquired angioedema is not a hereditary condition, HAE UK will help support those who are going through the process of testing which may result in this diagnosis.

Patients with such a rare condition benefit greatly from being part of a Patient Association so that they can talk to other patients and so that they can access the latest information about HAE Management.

Medical Advisory Panel

Dr Hilary Longhurst – Department of Immunology, Barts and The London Hospital, London, UK
Dr Mark Gompels – Department of Immunology and Immunogenetics, North Bristol NHS Trust, Southmead Hospital, Bristol, UK
Sister Christine Symons – Immunology Nurse Specialist, Plymouth Hospitals NHS Trust.

Hereditary Angioedema
Patient Association:
Living for today,
planning for tomorrow.

Registered Charity
Number: 1152591