HAE UK is an Association of HAE Patients, working together to improve the situation for all HAE Patients in the UK
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Contact us

Advice & support

You are welcome to contact HAE UK Patient Support to discuss your HAE needs in confidence.

E-mail: support@haeuk.org  or Telephone: 07975 611787

Write to us: HAE UK, PO Box 448, Bridgwater, TA6 9GB


Register with us

HAE patients benefit from information and support from our own patient association and we encourage you to register with us so we can work together to ensure better treatment and support for all our patients and their families.

If you would like to register for free HAE UK membership and to receive newsletters please complete our confidential online registration form


Join us on Facebook

We invite you to join our private Facebook group, HAE UK Association, where you can make contact with and gain support from other HAE patients in the UK.

Find out more here.


HAE UK on Twitter

HAE are now on Twitter. Find out more here.


Other support organisations

HAE UK work with and alongside other support organisations for patients with primary immunodeficiencies and their families. Please visit: UK PIPS and PID UK for more information.


HAE UK Mission

HAE UK is our new HAE Patient Association focusing solely on the needs of HAE patients and their families. HAE UK www.haeuk.org operates under the umbrella of the International HAE Patient Association www.HAEI.org

Our Mission Statement

To support residents of the United Kingdom who have hereditary angioedema (HAE), and their families.


  1. To facilitate access to the best available treatment for each individual afflicted by HAE.
  2. To promote good practice in the diagnosis and treatment of HAE.
  3. To promote research into new treatments and a cure.
  4. To provide support to those affected by HAE and their families.
  5. To seek to improve the quality of life of those affected by HAE.
  6. To support the work of HAE International.

Supplementary Aim:

Whilst recognizing that acquired angioedema is not a hereditary condition, HAE UK will help support those who are going through the process of testing which may result in this diagnosis.

Patients with such a rare condition benefit greatly from being part of a Patient Association so that they can talk to other patients and so that they can access the latest information about HAE Management.

Medical Advisory Panel

Dr Hilary Longhurst – Department of Immunology, Barts and The London Hospital, London
Dr Mark Gompels – Department of Immunology and Immunogenetics, North Bristol NHS Trust, Southmead Hospital, Bristol
Sister Christine Symons – Immunology Nurse Specialist
John Dempster – Immunology Nurse Specialist
Fran Ashworth – Senior Immunology Nurse Specialist

Hereditary Angioedema
Patient Association:
Living for today,
planning for tomorrow.

Registered Charity
Number: 1152591