Welcome to your HAE UK on line support for all UK patients with HAE – Hereditary Angioedema.

We hope that this website helps to answer some of the questions you may have about Hereditary Angioedema. Whether you are a sufferer yourself, are newly diagnosed, not yet diagnosed, or know someone who is a sufferer, you are not alone.If you do not find answers to your questions, or you would like a confidential chat, please get in touch with us. We are here to support you.

HAE UK Board members:

Mr John Rixon, Founding member
Mrs Kathy Rixon
Mr John Price
Mrs Ann Price, Patient Representative

HAE UK Committee:

Mrs Rachel Annals – Administrator and discussion forum & website manager
Ms Furkhanda Haxton – Patient representative, Scotland

Medical Advisory Panel:

Dr Hillary Longhurst – Department of Immunology, Barts & The London Hospital, London, UK
Dr Mark Gompels – Department of Immunology & Immunologenetics, North Bristol NHS Trust, Southmead Hospital, Bristol, UK
Sister Christine Symons – Imunology nurse specialist, Plymouth Hospital NHS Trust, Plymouth, UK