HAE UK is an Association of HAE Patients, working together to improve the situation for all HAE Patients in the UK
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HEA - Hereditary Angioedema

Welcome to HAE UK on line support for all UK patients with HAE – Hereditary Angioedema

HAE UK is a Patient Association focusing solely on the needs of people with Hereditary Angioedema and their families. HAE UK is affiliated to the International HAE Patient Association.

If you or someone in your family has Hereditary Angioedema (HAE), HAE UK can help with:

  • Information about diagnosis and symptoms
  • Signposting to Specialist HAE centres
  • Information about medications and individual HAE management strategies
  • One to one support and advocacy.


Each C1 Inhibitor deficient patient should be able to manage his or her symptoms proactively in such a way that they maintain personal safety and minimal disruption in living a healthy and productive life.


Welcome to our HAE Family


Posted on our website are details of a new clinical study into Women and the Effects of living with HAE. This is being carried out by Pippa Adams, a undergraduate student at University of Teesside. Please support this important research and help to advance the knowledge of HAE. Please see the news page for more details

The Research House are looking for individuals with HAE to participate in a web-enabled telephone interview. If you are interested in finding out more please see the news page for more details.

Branding Science are running a study and are looking for volunteers to take part. The study will aim to explore the experiences of people living with hereditary angioedema (HAE). Please see the news page for more details.

Dr Stephen Hughes is running a study for Shire, please see the news page for more details.

Hereditary Angioedema
Patient Association:
Living for today,
planning for tomorrow.

Registered Charity
Number: 1152591